In 2009 at 6 months old, Charlie was diagnosed with the terminal genetic disease SMA type 1. This is our story.
Awww Cherie... I am at a loss for words as I am typing through tears... I cannot imagine what you are going through... super big hugs to you, Matt and your precious little girl. C
I have been following your blog since you started it, this video is so beautiful! You can really "feel" what a living Angel Charlie is and the love you all give her emenates from the screen. I truly admire you both for your strength. HugsWendy(Cindy O's sister)
Thanks for sharing this video of your beautiful daughter.