Charlie just got new splints for her hands. It was suggested that we put them on her overnight. But, she's a thumbsucker and she'd never have it. So, we put them on her during the day instead. And, of course, it's just one more thing my angel puts up with and excepts. Problem is, I can't. I took this picture after I prepared Charlie for bed the other night. I stared at her with tears in my eyes, RAGING inside my head. This is how she sleeps EVERY night...splints (hand ones during the day), breathing machine, suction machine, feed pump, and a leg skirt to avoid her legs flopping open froggy style which can cause hip problems. Look closely. She is STILL smiling through it all. I look at this picture and I think to myself, why?! F*ck you SMA!