In 2009 at 6 months old, Charlie was diagnosed with the terminal genetic disease SMA type 1. This is our story.
Such gorgeous photos of summer fun with your Charlie! love love love her play-doh jewels. "you look gaaawgeous darlin'!" my fav photo being the one of you and charlie lying on the ground at cultas lake! beautiful!
A beautiful little girl. Love that you post from your heart ... I would love to meet y'all in person but from your blog feel that I already know you. Charlie is one lucky little gal.Deborah (from Louisiana)